Okay, I'm alive.

my backpacking route 

When I think of diabetes, I am constantly reminded of all the things I can't or shouldn't do. Most of these rules I break on a daily basis---like the fact that I am inhaling a bag of Wavy Lays as I type this. My backpacking trip was a small break from all of these rules because I accomplished something I thought I would never be able to do.

Some of my fears, doubts, concerns:

• What if my bag gets lost/stolen and my medicine is in it?
• How will I keep my insulin cool at all times?
• What if I slip into a low blood sugar and nobody knows that I am diabetic?
• Most importantly, how can one travel lightly when having to balance 3 months of medical supplies with a clothing addiction?

I started doing research online and with my doctor to figure out the best way to go about this trip. I was NOT about to lug around a cooler and ice packs, so I asked my doctor to be real with me...I asked how important is it to keep my insulin cool? She admitted that it is not about keeping insulin cool, as much as it is from keeping it from getting hot. My dad had a great idea: pack my pens in a thermos. This worked out great, because it was light and easy to cram in my backpack. If need be I thought I could drop a few ice cubes in the thermos, but I never ended up doing that.

My doctor wrote long letter with my list of prescriptions on it. I made one copy for my backpack and one for my purse. This was just in case my bag was lost /stolen and I needed to walk into a hospital and DEMAND insulin. Unfortunately, I am on a 90-day prescription cycle. So if I ran out when I was traveling, my insurance company said they would not be able to send me a refill. I never had to utilize this letter, but I felt much safer having it with me!

Another thing recommended to me was to pack 3x the amount of medicine that I would usually take for that time frame. 3x the needles, 3x the pens, 3x the pills. I still do not understand how I can walk onto a plane with 30 needles in my carry-on (let alone 300) without being stopped by security (Check out my post here).

And in case you were concerned about what I consumed..I did not hold back on drinking or eating anything...Sorry Dr. Aleppo.

Mykonos, Greece

Munich, Germany 

Ios, Greece

Paris, France

My trip was more than just seeing the world. It truly made me feel like I could accomplish something without my health holding me back. It was a great reminder that I can still do human things without feeling like I am on a regimented medical course everyday.


Contact me with any questions or similar traveling advice!
The DiaBlogger

HELP PLEASE!!

I am very excited to share that I will be backpacking around the Mediterranean this June + July! Unfortunately, due to my T1…the first thing I asked myself after I bought my plane tickets is can I do this?

I hate promoting that you can do ANYTHING with Diabetes, because truthfully deep inside I feel like I can't always do everything that I want to do. I will keep updating with my backpacking T1 checklist just in case anyone else is thinking about backpacking soon. This trip is do-able…but I do need to make sure that all of my ducks are in a row before taking off in June!

If you have been backpacking, I would LOVE some tips! So far, I have met with my endocrinologist and she said that the main things I need to do are:

• pack triple the insulin
• find a reliable travel cooler

I got the insulin covered, but I actually do not have a cooler. This is going to sound horrible--but I actually do not see the big deal about refrigerating insulin. However, I do think it will be important to keep my insulin refrigerated while living out of a backpack.

Any companies I should look at when making my decision on a cooler?? Also I would love to hear some suggestions on ice packs for traveling.
Please let me know!

xoxo
The DiaBlogger

HERE COMES SUMMER

HOW TO: pump iron while pumping insulin.

Putting on a swimsuit is just not in my cards anytime soon. Now that nice weather is here to stay, I need to put my winter body away. However, this is much easier said than done when you throw diabetes into the mix. I have really been struggling with keeping weight off and also following my daily medical routine. I recently took up running, which I have really enjoyed, but have found that running has repetitively given me high blood sugars. This is extremely frustrating.

With summer approaching I need to find recreational activities that keep my blood sugar consistent. Is this possible?

Here is an interesting web page I found with tips on exercising with T1. 

For the most part, I think that the goodness of staying active and participating in physical activities outweighs the bad of a slight higher or lower blood sugar. It is so important to stay active with diabetes, because we hold on to fat so easily due to our insulin intake.

The trickiest part of dealing with my health during the summer is not wanting to lug all of my medicine and medical supplies around. I feel like I can never go anywhere without a giant bags to cover all of my “what-if” situations. BUT NEVER GO WITHOUT. It is always better to be safe than sorry. Plus, with my luck if I ever tried to go without….that would be the time that I find myself in a compromising situation. AND ALWAYS, ALWAYS wear a medical ID. 

Stay active and enjoy the fresh air and flowers!!!!

xoxo

The DiaBlogger 

Educating Co-Workers

I have always worked in retail, so I have never really been in a work environment that was too strenuous for my health to handle. My managers all know that if I work in the evening I have to take a quick break to shoot up some Lantus and check my BG periodically throughout my work shift.

My biggest concern with Diabetes in a workplace setting is not putting myself in a position where I feel unsafe but actually educating my co-workers on diabetes.

I think it is safe to say that we have all become comfortable with diabetes, we live with it. The problem is that  I think sometimes it is easy to forget to mention crucial things when explaining how to treat diabetes to others. We deal with this stuff ALL the time.

[True story, I had a dream the other night that I was out to dinner and before my meal I counted my carbs...in my dream. Needless to say, I was pretty impressed when I woke up. ]

So who do you educate, when do you tell them, and what do you say?

In my opinion, the most important people to educate are your superior, and the people that you are surrounded by the most. These will be the people who will notice a change in behavior or attitude that can be attributed a low blood sugar.

Depending on the job, I don't necessarily think that your health status needs to be brought up in an interview. However, after landing the job it is important to make your close co-workers aware. I have found that it is the easiest to bring up my struggles with T1 diabetes when I am out to lunch with somebody. It easily explains why I have made certain food choices or why I mysteriously leave for the restroom with a sack full of needles before each of my meals.

When you do talk to your co-workers, they may be overwhelmed if you over-educate them. You want to focus on telling them what a low blood sugar is and what they can do to help you.

Something I always share when educating people on my health is the way I act during a low blood sugar. I am usually stubborn and am adamant that I do not have a low blood sugar.

"I don't need to check my blood sugar, I'm fine"

That is probable when I do need to check my blood sugar. Make the people around of aware of this. I think that people feel like you know what you are talking about and do not want to bother you about your health. However, in situations like blood sugars it is important for them to step in.

xoxo
The DiaBlogger

Gluttony for Gluten

My favorite part of being diagnosed with T1 was sitting with my nutritionist and listening to the long list of fabulous diseases and disorders that I now have a 26% higher, 13% higher, 67% higher or 42% higher chance of getting. 

"Congratulations. You just got T1 Diabetes. Regardless if you take care of your health or not, here is a long list of problems you will probably come in contact with in your far, or not so very far, future."

Am I the only one who feels this way???

The only disorder that struck my attention the most from this looong list was Celiac Disease.  I think it caught my eye simply because gluten-free diseases have been so trendy recently. I am sure you are all aware...but just in case....Celiac Disease is a condition in which you must go on a strict gluten-free diet. 

FUN FACT: 3-8 % of people with type 1 diabetes will have biopsy-confirmed celiac disease. 

So...recently (over the past month or so) I have been experiencing some severe stomach pain after eating. I tried to track exactly what food I was eating that was causing the pain. Unfortunately, many of the meals I had pain after had a combination of dairy and gluten. When I ate dairy or gluten separately, I would have absolutely no stomach pain at all. This led my doctor to believe that my stomach pain was IBS related because it was also occurring during more stressful times for me. 

To make a long story shorter than I am making it....This past week, my stomach pain has evolved into some digestion issues. I will elaborate this way: when I eat gluten, I have about 5 minutes to get to the nearest bathroom. 

According to the National Foundation for Celiac Awareness:

Celiac disease associated with diabetes is usually silent, showing no symptoms, and may only be found upon screening. Signs and symptoms, such as abdominal pain, gas, bloating, malabsorption, weight loss, and abnormal liver function tests may also be seen and easily confused with poor glucose control of type 1 diabetes or gastroparesis - when the muscles in the wall of the stomach do not function normally.

So tonight, when I was low blood sugar I opted for eating a piece of toast with crunchy peanut butter. YUM. I was getting ready to leave my apartment to get on a 10 hour long Megabus ride home for the weekend. So I figured the toast would raise my blood sugar and the protein in the peanut butter would keep my blood sugar stable. 

CARBS  + PROTEIN= GOOD DECISION

TOAST= BAD DECISION

 I am not diagnosed with Celiac or gluten intolerance, but my body is speaking LOUDLY, clearly and very brownly [sorry if that was too much information]. 

Well, I am leaving you all there. Please, PLEASE let me know of your experiences with T1 & Celiac. I am new to the business. And wish me luck on my bus ride with my digestive issues..... only 8 more hors to go, right?

xoxoxo

The DiaBlogger

CGM

After moving to Chicago, I was forced to find all new doctors. Starting with an Endocrinologist. Lucky for me, I found a doctor I love at Northwestern Memorial Hospital in downtown Chicago.

I was able to have my first appointment in February, but I left wary because she explained to me that in order to be a part of her practice it was mandatory that I submit my body for a full week of observation. Meaning, I had to come in and get a continuous glucose monitor (CGM) placed under my skin and wear it for a week.

Anyone who knows me well or has read about my feelings about wearing diabetic devices knows how uncomfortable this makes me feel. Yet, here I am in the endocrinology clinic now getting ready to receive my CGM.

From my research, I don't think that wearing it for a week will be that big of a deal. I am on spring break this week, so a lot of my friends are not at school. That eliminates my fear and insecurity of having to respond to "What is that?!"

However, my biggest concern is that I will be running a 10K on Sunday and I don't want it to like....fall out it something. Can that happen? I'm so nervous!

I would love to get feedback from anyone with experience with a CGM. I have NO idea what to expect.

Wish me luck!!
The DiaBlogger

DON'T FORGET THE INSULIN!!

All of us have our own special ways to keep our diabetes supplies organized and accessible at all times...some of our ways are much better than others. I would hope that all of your organization tools are better than mine.

MY WAY: a gallon ziploc bag containing multiple humalog and lantus pens, handfuls of needles and alcohol swabs, a glucose monitor, extra testing strips, a glucagon pen, glucose tablets, and a tube of frosting.

It's quite a site watching me pull it out at sleepovers, restaurants, and in airports. I would love to know what goes through people's minds while they watch me pull out a ziploc bag full of frosting and needles. However, it is what works best for me.

The bad part is when I forget the bag....I forget everything. SO- I am definitely taking notes if anyone has suggestions on how I can better keep track of my supplies. I also am known to overpack (see picture above). So once I finally get my suitcase zipped, it is extremely depressing to see that I have packed everything I don't need and not the one thing I do need, my diabetes supplies.

When it comes to traveling, diabetes supplies are ALWAYS at the top of my travel list (right next to blankie and cell phone charger, obviously). Even though I always try to remember, I have been put in multiple situations where I did leave my bag and was left to venture on an insulin-less vacation...sounds great right?? But an insulin-less vacation is anything from fun as I am sure you have all experienced.

Here are my tips for you:

1. I know I feel too old to be reminded things, but there is NO shame in having a designated person to remind you while you are packing your things to pack your supplies. 
2. Write it at the TOP of your packing list. 
3. Pack supplies in your main suitcase as well as in your carry on. That way if you forget to throw the supplies in your carry on bag, at least you will have something to fall back on when you open your main suitcase. 
4. Switch your prescription over to a drugstore. I like to keep my prescriptions at a grocery store, however, having access to your medications at places such as CVS or Walgreens will come in handy when you are some place that your grocery store is not located. 

By the way, I have always wondered how needles are allowed through security? I am sure it is very common for the TSA to see needles in security, but I have never been stopped or questioned. Are they trained to look for certain needles? I have always been curious and would love to know. 

I'll being flying out to Pennsylvania next Thursday to see my grandparents for Easter. So maybe I will cross my fingers that the TSA stops me...just so I can ask them a few questions myself!

I hope you all have a wonderful Easter and Spring Break. and please, please DON'T FORGET YOUR INSULIN. 

safe travels, 

The DiaBlogger