Diabetes is a complicated disease that makes me personally feel like it is me vs. the world. It is a diagnosis that is isolating and depressing. Many patients that are diagnosed feel the heavy weight of the disease just due to the name. Our society paints a very negative picture around the disease, and sometimes just using it as a word to describe me makes me unbearably sad. It is difficult for me to be surrounded everyday by people who do not comprehend my constant struggle. Here is an article that discusses the severe risks that diabetics face when they do not seek out support.
I love my friends and family more than anything, but sometimes they are no the support system I need when it comes to my health. When I was first diagnosed, it was difficult for me to take my health seriously because nobody around me did. Sometimes I felt like people either underestimated or exaggerated my disease...there was nothing in between.
My biggest pet peeve is when people without diabetes try to correct something that is related to my health or act like they know how my diagnosis makes me feel. I do not always make the best choices for my health, but if I want some chocolate every once in awhile, I am NOT about to let my burdensome disease stop me.
Joining Glu was a turning point in my life with Diabetes. Glu and other online communities are so important for people who are looking for support and information. Being connected online has taught me so much about my health, and little tips and tricks that I never learned at my doctor's office.
I love communicating with other T1's online, because I feel like we are equal.
Another great option for people who want face-to-face support is finding a therapist or a local community. Many college campuses have College Diabetes Network (CDN) Chapters. This is a great way to connect with other people in your community that you can reach out to. Also, look at your community centers. This is an easy place to find groups that use the community centers for a meeting place. If you are striking out, always ask your doctor or nutritionist--they should be in the know, if not, we are in trouble!!
If you find yourself down in the dumps about your diagnosis, always remember this:
"If we all threw our problems in a pile and saw everyone else's, we'd grab ours back."
xoxoxo
The DiaBlogger
